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06-19-2005, 08:14 PM

Christine, I so much agree with you but am having difficulty getting a brain MRI with new Kaiser neurologist. In the past the neurologists would order. I have a new one--due to the fact that the one to whom I had been assigned kept leaving--after my former one of almost 30 yrs left. (I saw him privately for M.S. before he started working at Kaiser). I was recently told that my onc would be responsible for ordering these scans. The onc. will not routinely do unless there are symptoms. And, even at that, they won't do it for all symptoms. When I was discussing possibility of brain mets the oncologist told me that basically the only time he will order tests is if symptoms include an unrelenting headache.
I am quite frightened by their neglectful stance which could result in delayed dx and delayed treatment and shorter survival which is most cost effective for them. Any idea how this poairion can be changed? Any time I had a symptom in the past, the onc sent me to the neurologist. One of the neurologists said they can always say the symptom (even if mets) was related to M.S.--even if it is not...I am so frustrated by their patronizing, cavalier, and neglectful position...

06-19-2005, 08:14 PM	#3
Kaye Guest Posts: n/a	Christine, I so much agree with you but am having difficulty getting a brain MRI with new Kaiser neurologist. In the past the neurologists would order. I have a new one--due to the fact that the one to whom I had been assigned kept leaving--after my former one of almost 30 yrs left. (I saw him privately for M.S. before he started working at Kaiser). I was recently told that my onc would be responsible for ordering these scans. The onc. will not routinely do unless there are symptoms. And, even at that, they won't do it for all symptoms. When I was discussing possibility of brain mets the oncologist told me that basically the only time he will order tests is if symptoms include an unrelenting headache. I am quite frightened by their neglectful stance which could result in delayed dx and delayed treatment and shorter survival which is most cost effective for them. Any idea how this poairion can be changed? Any time I had a symptom in the past, the onc sent me to the neurologist. One of the neurologists said they can always say the symptom (even if mets) was related to M.S.--even if it is not...I am so frustrated by their patronizing, cavalier, and neglectful position...