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I am in the same boat when it comes to the onc's delivery of info. After reading so much about Herceptin, I find I know more about it than my oncologist. Scary thought! I do have 2 oncs that I work with. I was dx'd Stage 1, yet multifocal. Opted for lumpectomy and dose dense AC + T and rads. I feel confident but still keep the port in case I can get Herceptin. At this point, the insurance company is reviewing my case. If they do not pay, I don't know what I will have to sell; (my home? my kids?). It costs approx $76,000 a year for Herceptin for people who did not qualify for trial. I have a sister that lives in Chile and Herceptin is considerably cheaper there!
Bottom line- $$$!!!
Once our subgroup is deemed qualified for use of Herceptin, then the ins carriers will need to add us to their costs. A price they are not willing to pay right now.
mts
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