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MaryAnn --
I didn't understand this part of your message:
1-- you said as of 4/26/05 you are NED? Because of NED, did your doc. mean to take you off chemo & just go with the herceptin every 3 weeks?
2-- if you are continuing the taxotere & carbo. along with the herceptin even at NED I'm wondering why you aren't being given a break from chemo?
Anyway, if you are getting both the chemo & herceptin, could you try it every 2 weeks instead of 3 to see how it affects you, then go back to weekly if the side effects are too great?
I also have inflammatory bc with bone mets. I was on taxotere & herceptin for 6 months. I got the taxotere 3 weeks on & one week off & the herceptin weekly. Sometimes they would give me a 2 week dose of the herceptin so I wouldn't have to come in on my week off chemo. That was great.
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