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I have a few corrections to make on my previous posting. I called my oncology and talked to the nurse working on my case and she said the place that has it is in Baxter, Germany. It is now being held at JFK airport and the FDA has refused to release it to my doctor. He is appealing the decision with the FDA. I did call Baxter Oncology and they told me they were in the same situation not able to get it because of the FDA refusing to release it at the customs!! She said she did not know of any other place it could be obtained. Only a doctor can fill out the forms to get it. I have also sent my congress woman a letter for help. I am not lobying only asking for help. I also got the FDA number and will call them as well. Any more questions please let me know. I will keep you all updated on how this goes. hugs, Sandy
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