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Dear Sandy
While I can believe anything with the FDA, I am shocked that they could deny something that has worked for you. The FDA has a patient advocate office that you should contact. I think contacting your congressperson is a great idea.
But if all else fails, are you well enough to take a trip to Europe to stock up? That seems like the fastest and perhaps the most enjoyable way.
I wish you all the best. How frustrating!!!
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