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StephN · 05-15-2005, 11:46 PM

Hi Eric -

First, I wish to thank Joe for posting the good news. And there are many of us who are still adding to the stats and pushing the survival rates even further out. (Me included!)

Good news that Caryn is NED! If your wife has not had a brain met yet, she is lucky to get a brain MRI more often than once a year. That seems to be the normal time frame for screening, unless she has a specific complaint that would warrent it.
Those of us with brain mets are the ones who get the every-three-month brain MRI schedule.

I have not had a MUGA since starting on my clinical trial to beat out my liver mets. That is 3.5 years ago. I did have some heart workups lately as I had tightness in my chest, but that seems to be due to other causes. My onc says as long as my blood pressure is stable and other frequent monitoring shows nothing, there is no need as I have been off chemo for so long now. Once we have shown the our bodies acept the Herceptin, he sees no need to do MUGAs unless some change or complaint would show a need.

I only get my abdominal CT scans every 6-months now, as markers are stable.

05-15-2005, 11:46 PM	#7
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi Eric - First, I wish to thank Joe for posting the good news. And there are many of us who are still adding to the stats and pushing the survival rates even further out. (Me included!) Good news that Caryn is NED! If your wife has not had a brain met yet, she is lucky to get a brain MRI more often than once a year. That seems to be the normal time frame for screening, unless she has a specific complaint that would warrent it. Those of us with brain mets are the ones who get the every-three-month brain MRI schedule. I have not had a MUGA since starting on my clinical trial to beat out my liver mets. That is 3.5 years ago. I did have some heart workups lately as I had tightness in my chest, but that seems to be due to other causes. My onc says as long as my blood pressure is stable and other frequent monitoring shows nothing, there is no need as I have been off chemo for so long now. Once we have shown the our bodies acept the Herceptin, he sees no need to do MUGAs unless some change or complaint would show a need. I only get my abdominal CT scans every 6-months now, as markers are stable.