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JoJo -
I sure hope the next MRI shows that spot continuing stable. I still don't quite get the "radiation damage" part. Have not heard of that in any of the research I did prior to my GK. (That it would mimick the tumor growing back.) But, I know that I got some "radiation flare" in my right chest area long after finishing my 36 rads, so maybe this is something like that.
The best part is getting off the Decadron - nasty old pills!
You will start to feel better about a week into the taper and it will go uphill from there. Takes a while to get the stuff out of our systems. My face and neck are almost back to normal after 3 weeks off the pills - no more "chipmonk cheeks" and jowels.
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