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Hi,
I am currently getting WBR for brain mets. They were not causing me any symptons but I have some edema so I had to go on decadron. I remember from getting it at chemo. that I react very strongly to this medicine. It makes me hyper and I can't sleep.
My radiation oncologist let me build up the week ahead slowly and I now take one 4mg. pills 2x a day. They wanted me to do 12 mg. I seem to be able tolerate it now, and also take something to sleep so I am doing OK.
If I start getting headaches from treatments, I may move up to another decadron pill.
I think the key is to taper on and off Decadron. It does give you relief from symptoms.
Make a plan with your healthcare providers to make it work for you. You need to get some relief! There are ways they can halp you.
Feel Better
Isabelle
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