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Hope, I started taking decadron in Feb, after experiencing the occasional dull headache and then soon after a head MRI indicating edema in the cerebullum. After taking the steroids for a month, the edema went away. Headaches also disappeared almost immediately.
I did have just one Gamma Knife back in Aug of last year. Tumor did shrink more than 50% over time, but grew back to almost the original size in Feb of this year. Was supposed to have brain surgery tmw, but based on today's head MRI, they are now saying maybe it is radiation damage, not a tumor, after all. So, surgery is indefinitely postponed / cancelled. Will know the answer in a month, after taking another MRI follow-up next month. Hopefully, the surgery is forever cancelled!
Anyway, they will be starting to taper me off decadron this week... YAY! I am getting weary of my wobbly knees & an appetite that is out of control!! Gotta lose those weight now!
Hope, you are in my thoughts & prayers. Please keep us posted.
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