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Hi Victoria
I was dx with Stage II BC (grade 3, PR/ER -) nearly four years ago with 1 lymph node involved out of 13. I went on a clinical trial with Adriamycin/taxotere 3 cycles of each 3 weeks apart..followed by 3 cycles of CMF 1 month apart... so 9 cycles of chemo. (30 weeks). followed by 6 weeks of radiation treatment. About two years ago I asked for my tumour (in the tumour bank) to be tested for Her 2 and found it was positive. Since then I have been periodically trying to keep up with the Her 2 research. I went to a public lecture in Melbourne given by Denis Slamon who was instrumental in bringing Herceptin to reality and was very impressed not only by the Herceptin results but also the latest results that are being achieved with herceptin in combination with other mono. antibodies.
At the same time I was having my chemo. two women were participating in the Herceptin trial..they both had advanced BC. Now I know they are both off Herceptin now but I believe that they are both stable 4 years on.
If I was given the option of having herceptin as adjuvant treatment when I was dx I would have taken it.
I also take flaxseed oil and have also seen some positive research on the omega 3 fatty acids contained in flaxseed oil and her 2. The other thing I am religious about is Coenzyme Q10 (100 mg ) a day which also has some documented anticancer effects as well as general health and feeling good.
I have also read that after about 4 years the rate of recurrence for Her 2 BC levels off to about the same as non Her 2 BC.
I would like to keep in touch with others who hav been dx with Her 2 Stage 1 or 2 so keep in touch. I am thinking of you.
Jackie
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