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01-04-2005, 04:14 PM

My PET/CT fusion scan is clear! I should clarify a bit further though.....since my recurrence was a local one last May, the PET/CT picked up a small area of concern ( rpt said, either fatty tissue or persistent tumor ) seen in same area as my local recurrence.

My Onc wants to look at the scans herself (had only seen report of the PET) and then make a decision. The Radiologist suggested a 4 week waiting period and then re-scan. So, this is a kind of gray area right now (I will see Onc this Thursday), but I am VERY thankful that everything else is clear (lungs, liver, other lymphs, etc..). Thank you all for your thoughts on my "waiting for results" email. It is so very frustrating sometimes. I started placing calls at 8:30 a.m. and finally after 3 more phone calls I placed, my Physician's assistant called me back. It must have been VERY busy there, it took me 4 hours to get the results! If there is another scan in my future, I WILL discuss how I receive the results, thoroughly with my Doctor. This was crazy!

After receiving my results I trooped my 11 year old over to the Pediatrician. His acid reflux is causing us more problems. Ped thinks it could be a bacterial infection of the stomach acids, so we have some antibiotics now to add to his Prevacid. He stayed home from school today as he was feeling so poorly. A bit perkier now, but I don't think the anxiety of my test results had that much to do with his being sick. He was certainly happy that my results were good, but still stayed on the couch feeling "yucky" (to quote him). LOL.

I agree that children DO need to be sheltered from the hard facts, all of my sons are. But, they sense things around the house and since I have young children, they are here at home with me and hear things. I gave them all a choice about hearing the results. 2 stayed home and one went to school. He called twice during the morning from school to hear the results. They are so brave and I am very proud of them. I do NOT give the HARD facts about my disease. They are just kids and I want them to live as "normal" a live as possible. As we always say...."We are just a family whose Mom happens to have Breast cancer". Otherwise, we're no different than anyone else. I am VERY HOPEful that I will beat this disease and so will many, many others!!!! There are so many new treatments coming into play....we will continue to see many advances. And thank the Lord for Herceptin!

Lolly, Lisa, Celina and AlaskaAngel thank YOU al for your insights and suggestions.

It IS terrible having to wait. But, if there is a next time for scan results, as I said before, I will work with the medical team to find a better way to receive those results!!!!!!!! I am VERY persisitent!! Ha!

Thanks again,

Keep up the good fight.

Cindi.

01-04-2005, 04:14 PM	#6
_Cindi_ Guest Posts: n/a	My PET/CT fusion scan is clear! I should clarify a bit further though.....since my recurrence was a local one last May, the PET/CT picked up a small area of concern ( rpt said, either fatty tissue or persistent tumor ) seen in same area as my local recurrence. My Onc wants to look at the scans herself (had only seen report of the PET) and then make a decision. The Radiologist suggested a 4 week waiting period and then re-scan. So, this is a kind of gray area right now (I will see Onc this Thursday), but I am VERY thankful that everything else is clear (lungs, liver, other lymphs, etc..). Thank you all for your thoughts on my "waiting for results" email. It is so very frustrating sometimes. I started placing calls at 8:30 a.m. and finally after 3 more phone calls I placed, my Physician's assistant called me back. It must have been VERY busy there, it took me 4 hours to get the results! If there is another scan in my future, I WILL discuss how I receive the results, thoroughly with my Doctor. This was crazy! After receiving my results I trooped my 11 year old over to the Pediatrician. His acid reflux is causing us more problems. Ped thinks it could be a bacterial infection of the stomach acids, so we have some antibiotics now to add to his Prevacid. He stayed home from school today as he was feeling so poorly. A bit perkier now, but I don't think the anxiety of my test results had that much to do with his being sick. He was certainly happy that my results were good, but still stayed on the couch feeling "yucky" (to quote him). LOL. I agree that children DO need to be sheltered from the hard facts, all of my sons are. But, they sense things around the house and since I have young children, they are here at home with me and hear things. I gave them all a choice about hearing the results. 2 stayed home and one went to school. He called twice during the morning from school to hear the results. They are so brave and I am very proud of them. I do NOT give the HARD facts about my disease. They are just kids and I want them to live as "normal" a live as possible. As we always say...."We are just a family whose Mom happens to have Breast cancer". Otherwise, we're no different than anyone else. I am VERY HOPEful that I will beat this disease and so will many, many others!!!! There are so many new treatments coming into play....we will continue to see many advances. And thank the Lord for Herceptin! Lolly, Lisa, Celina and AlaskaAngel thank YOU al for your insights and suggestions. It IS terrible having to wait. But, if there is a next time for scan results, as I said before, I will work with the medical team to find a better way to receive those results!!!!!!!! I am VERY persisitent!! Ha! Thanks again, Keep up the good fight. Cindi.