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Old 01-03-2005, 09:29 AM   #7
*_Annemarie_*
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I have had brain mets three times (primary bc in 2000). The first met was large back in 2001 and I had a craniotomy. The second two were tiny 7mm in 2002 and 5mm in 2004. The tiny one's I did have gamma knife but I also had radiation to the brain. I have minimal side effects from the radiation. this is your life. We are only given one life so you have to consider the most aggressive therapies available. I also took Temodar for a year after surgery and radiation to the brain. I am on one other message board and I know most all of the top institutes in the nation recommend WBR including John Hopkins, Sloan, Columbia Presb just to name a few. This the protocol. Really think this through because you can have a stroke, a seizure or as the message above said it can go to the spine. I get a brain MRI every three months and if your hair is of concern all mine did come back. I stuggles with this decision so I know it is a difficult one but I am not an oncologist. Christine and Joe are almost oncologist and I know Christine had WBR. Something to think about.
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