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Hi Janet,
I think all of us would like to know the answer(s) to those questions. I have looked at so many sites and have even wrote to the company sponsoring my trial and to no avail. The response is it is to early to tell is the by line. To me, if they can continue on to other phases of the trails then there should be some information out there to support finding that something is working and it is ok to proceed, but I can't find them anywhere.
Maybe we should ask Eric, he seems to be the master of finding studies. The last inquiry I had, I was directed to the Library of Congress and I haven't had time with the holidays to search. If I find anything I will happily share it. We are a minority, but yet it blows my mind on how many trials are being done in the name of HER2. Vaccine trials, trauz. trials and still nothing. Did your Dr. give you any kind of prognosis? Mine said 50/50, I wonder where they get there info, or if it is just field related experience? This board here has given us more insight to our disease than any medical publications. Every body shares success stories and treatment options and treatment failures. All I can add is to stay in touch with this board, for it seems to be on top of what is going on for and around us. Take Care k
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