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Sandy,
I do not have IBC, but do have skin mets. Actually just finishing up my daily hyperthermia radiation treatments (also includes 1000 mg. Xeloda each day). I have 4 more treatments. Then a PET CT fusion scan and will find out what's what. Hopefully I am NED. But, as you stated I realize that skin mets can recur. I'll always be on the lookout, like every other pain we have to wonder about.
Good luck with YOUR followup scans. The waiting is the worst for me. I will keep you in my prayers.
Cindi.
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