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Hello Beatrice -
Sounds like you are fighting this pretty well. I know what it is like to fear a spread to other organs. My mets were in liver big time and starting into bones. My treatment got it all and I am NED.
When I was treated for mets I had all parts scanned to see where the cancer was. After initial scans had an abdominal scan every 4 weeks then every 6 weeks when there were only a few tumors left and markers going down. When we thought the cancer was done, I had a PET scan to confirm. I did have a full body bone scan about 2-3 months after getting OFF chemo as I had pain in my ribs. There was no evidence of cancer.
I would think that a bone scan would be a good idea to rule out anything there. I also have a chest x-ray once a year besides the CT that also shows most of my lungs.
All the best wishes for a successful fight against any more spread and to knock out what is there now. Many patients have good success on the drugs you are taking.
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