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Hi Patty,
I was so surprised by your post that I had to reread it! Is there any chance that your onc just thinks that you should hold off on chemo until a metasteses can actually be found in your body (besides the brain)? Before recurrence, I had a Pet scan when my Ca27/29 became slightly elevated, nothing showed up and I didn't begin treatment until it did. Since then I have had disease progression while on herceptin but my onc believes that it helps the chemo drug do a better job. If you are her2+, you should continute with your herceptin! The bottom line is that you have many drug options to help you and there is no reason for a negative outlook! If your onc isn't positive and supportive of your fight, by all means find another who is. This website is proof that women can live for many many years with metastatic b/c, and you can too!!
Lots of love,
jackie
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