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Snap, I did in October, been short of breath for ages, just talking on the phone I was gasping for air, let alone walk to the letter box. I went by ambulance to ER, I felt like a fraud because I could still walk. I had been experience a taste in my mouth similar to when you get dunked by waves in the surf, apparently that was the salty fluid build up in my lungs. I was breathing loud in my sleep and copped heaps for that, and wouldn't you know it I was actually near death. I had to take fluid tablets in the ER and when I was admitted to the ward over night I peeeeed out 5 kilos of fluid, I went to bed weighing 75Ks and woke up weighing 69Ks, also picture this, I had a sleeping tablet as well so I was stumbling to the toilet like a drunk. They were going to remove the fluid and drain it by untra sound, but decided to try the pills first. I was in hospital for 7 days, and at one stage the specialist listened to my heart, and as he went around clockwise, and his partner in crime wrote it down, it was heart failure...whatever, heart failure whatever....for 4 valves and I think we have 6, no one bothered to tell my I was so ill, and I wasn't even in ICU. My sister rang and they told her it was serious and I was very ill, I know I felt ill, I just felt like dieing. This all came about after I was treated the week before for thyroid in same hospital and same docs, they think they did it, but when I did my research on the computer I came up with Cardiac Tamponage, I had all the symptoms, underlying tumour near thyroid, only just been diagnosed and treated with radiation, I had been trying to tell them since last June I had a lump, but it was put down to the Thyroid and now got round to treatiang it, I also had an overlapping connective tissue order (similar to SLE)mouth and face ulcers caused by depleted immmune system. I know my thyroid is OK now because I finger nails are back to normal and the blood test proves it. Now I have to have an MRI on my heart on 17Fen along with Eco and Bloods, now the best part it had absolutely nothing to do with the Herceptin or the Navelbine. I had stopped the Navelbine a couple of weeks before because I was supposed to go to hospit for reconstruction not heart failure and when I was discharged I had my usual triple dose of Herceptin, because of the hospital visits I had missed 5 weeks under the assumption 5-6weeks it stays in the body, I also went into hospital with the knowledge my CA-15.3 marker was 17 so I wasn't worried when the CT scan of my lung said Mets, alarm bells went off as to who was to treat me, and as I found out it was only fluid not mets, like I didn't know any better .Taking Aromasin with the Herceptin and tumour marker, when I got out of hospital was 7!!!!never been that low in my life, or should I say since 1998. Well of course they finally decided to do biopsy with Ultra sound as CT scan still came up as NED and still does even since I started radiaiton treatment and wait for it the tumour marker is now 10 and all bloods normal, except it looks like I might get GOUT woopee, how much more torture are we to endure, I figure the alians are using us so when the docs can cure us we pass the test to meet them. There was heaps more to my drama but it would read like a novel. My GP today said she can hear the first murmour but only just the other, when I went to hospital my heart was working like a washing machine, and the week before when I told the girls giving me my Hercpetin that my pulse was going from 45 to 120 and no even rythem they just said oh well, we will se you in 3 weeks, go figure that. I am convinced if we don't keep a vigil on this and do our own diagnosing, they will miss the boat.
Hugs Lyn
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