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Old 02-05-2004, 09:13 AM   #10
patty z
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Ann,
I had mets to aortic window node, biopsy could not remove it all. Spot on lung, spot on pelvis. My tumor marker had risen to 220.

I had Navelbine/Herceptin for two months, three wks on, then just Herceptin the fourth week. That is all it took to put me NED. My tumor marker dropped to normal and all scans were clear.

I have read of others getting your proposed dosing schedule since then, however.

My side effects were: lots of short jabbing pains throughout my torso area. We here, have called them 'ping pong pains' as they seem to bounce around. This lasted for the first day or two for the first three? weeks. There was also a severe jaw pain/cramp that lasted about 20 mins once, and about 10 mins once.

My hair thinned, but not so anyone else noticed.

My counts got low. I never had any shots tho'. I did however, get a UTI that the first round of anti-biotics did not touch, so that it went to my kidney and sent me to emergency.

The Herceptin is a piece of cake. It is the Navelbine that can cause you some trouble. I can't remember, but really hope you have a port for your infusions.

The Decadron gave me more trouble than it was worth and I asked for it to be discontinued. No promblems.

I became more and more tired, cumulative. Took me about 6 mos to come back after I stopped. I The Decadron gave me more trouble than it was worth and I asked for it to be discontinued. No promblems.was 53 at the time. That was 14 mos ago that I finished and am still NED in body.

You can do this. They even reduced my dosage once, the last time, and that can be done for you, too.

smith had Navelbine, similar side effects and she got her dose reduced as well... I'm sure she will post to you...

loveyou, bighugs,
pattyz
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