HER2 Support Group Forums - View Single Post - Any of you her2-neu (3+), T1N0 and not on Herceptin?

04-29-2004, 03:29 AM

I'm finishing up my fifth chemo of six 3-week sessions (FAC) and really want to add Herceptin afterwards, but my med. onc. doesn't think it's necessary. I had a 1.5 cm. tumor and three negative lymph nodes. My diagnosis was Paget's disease of the nipple, DCIS and infiltrating ductal carcinoma. From what I'm reading here, even node negative-individuals can benefit from Herceptin. Is this correct? With which metastases does it help: liver, lungs, brain? Also, what is NED? I don't understand the acronym. Are there any of you long-term survivors who stuck with a traditional regimen without Herceptin and are clean?

Thanks, Happy Spring and Wishing you each well,

Vicki

04-29-2004, 03:29 AM	#1
Vicki Guest Posts: n/a	I'm finishing up my fifth chemo of six 3-week sessions (FAC) and really want to add Herceptin afterwards, but my med. onc. doesn't think it's necessary. I had a 1.5 cm. tumor and three negative lymph nodes. My diagnosis was Paget's disease of the nipple, DCIS and infiltrating ductal carcinoma. From what I'm reading here, even node negative-individuals can benefit from Herceptin. Is this correct? With which metastases does it help: liver, lungs, brain? Also, what is NED? I don't understand the acronym. Are there any of you long-term survivors who stuck with a traditional regimen without Herceptin and are clean? Thanks, Happy Spring and Wishing you each well, Vicki