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Hello again ladies,
I find myself once again, coming to the message boards for help. I am thankful that Debbie asked about the muga scan and herceptin. I have a two part question:
1. Although I am in a clinical study for herceptin, I am in the "watch and see" study to do the regular treatment without the additional herceptin that is 4 cycles of AC then 12 cycles of Taxol which I have three more to go through now. Question: Being a stage 3b her2neu + should I push to get herceptin?
2. Which this may effect the answer in question one. I had a muga scan when I began this crazy adventure and I was at a 58%. Good, not great. Twenty days after I completed the 4 cycles of AC I was tested again with a MUGA and went down to a 48% (even if I was in the arm of the study to recieve herceptin I would have been dropped as they want you above a 50%) .... 7 cycles into 12 of Taxol they did another MUGA (because it had dropped so much) and now I am at a 42%. Seems it has dropped another 6 points since I have been on Taxol!
At what point do I freak out? I go in on this Friday for hopefully my 10th treatment of Taxol. Reoccurance is always in the back of my mind and now I think, what drugs will they give me? Can I afford to loose another 16 points? Can you do anything to raise your points?
As always, I admire, respect and value your opinions... you are beautiful people I turn to in the middle of the night, when I am alone at this little machine that has way too much informaiton that is not reliable or given by a person who hasnt gone through it. Any thought would be greatly appreciated!
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