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Hello Al -
So sorry to learn that the combo Linda is on did not do more against her disease. From what I know about these situations with fast moving disease you have try to do more than stop it in its tracks. Linda is younger than I am and I am sure can support a stronger combo, whatever that may be.
Quality of life was not my first thought - it was to LIVE so I could worry about "quality" later! Even under a hard chemo treatment for 7 months, I could do many of my normal activities, just not as long or as often. I reached NED having begun with almost 60% of my liver in fast-moving disease. Most people i would casualy meet were not even aware of my illness even toward the end of my treatment when I was pretty worn out. So, it is not as bad as some think.
The "holding pattern" was not what I wanted - too hard to move on from that position and this also gives the cancer a chance to get used to the drugs.
Is Linda ER and PR negative? Can't recall. This could mean a change as well.
Linda needs a full body PET scan. Insist on that no matter what. They need to know the full extent of her disease - or if it is still only in her liver. This I would not budge on. This is the best way to tell what is still tumor and what is scar in her liver. Without this information, I would not go forward.
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