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Esther -- Thank you so much for your reply & support. How does your 21 yr old react/handle things? My 24 yr old doesn't say much, I don't know how much he "gets" the seriousness, but he doesn't talk about it at least with me, so I don't know. My 28 year old, doesn't want to talk about it much either, but he's always very vigilant & overly worried at every little ache I have. I almost feel like I have to "perform" a feel great front for him, otherwise he'll drive me nuts. They're both very caring guys, but they can't be my support - they're my 'kids'.
I guess you are right that we who are living this will always be alone in it. I'm sure that why this site is so valued by so many people. I wish I could have more of this kind of connection with people. The get together in So. Cal. sounds like such a good opportunity. I live in Minneapolis & would love to have a get together here.
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