jra40 and Donna are totally spot on, and not just for us HER2 gals. I think we all have felt like complete afterthoughts after active treatment. My primary care doc was willing to do my follow-up care but he admitted that oncology was out of his practice area and wanted my MO to let him know what he was looking for. If that had happened then maybe my brain tumor would have been caught sooner.
Since I have been diagnosed as stage 4 they have gotten more interested in me by far, paying customer and all, but they still had no idea how to handle this disease progression which has always been entirely logical and could have been anticipated.