[Juls]

When I was first diagnosed in 2013 I was to have surgery & possibly chemo. There was a delay of 2 1/2 months before treatment started. They did not do CT' & bone scan. This delayed treatment. They told me all well. It wasn't. Eventually scans arranged. Small tumour in liver and tiny mark on back. Then sent for MRI - mark not connected but liver was. They said cancer because it had a blood supply. I asked about biopsy, ablation etc. Told No. Moved to another hospital. I did docetaxol, herceptin and Perjeta. I did so well on Docetaxol, that I was asked to consider 2 more cycles of it. Belts and braces idea. Well - no brainier I did.
Liver lesion not seen on CT after a few cycles. Never biopsied and this has concerned me for past 3 years. How can you be 100% on this. Then about 6 months to a year after liver lesion last seen Onc decides it might be worthwhile having it ablated by Liver Specialist. After all she reckoned it was still there with hundreds of cells! So Liver Specialist contacted. Months pass again before he replies. No point now its not seen, so we move on. Then months later mark on back brought up again. She thought it looked better. This is where I lost it. Said I had scan specifically done for this & not connected. She offered me a biopsy. A biopsy for this but not the liver lesion? I refused. No way I was having a biopsy of my spine on a tiny mark that all scans said not connected. This scenario has continued on and off since January 2013.

It will be interesting to see if biopsy of bone will be mentioned after x-ray etc. Again this worries me. After experience with breast biopsy I am a bit concerned. Biopsy done and lump changed shape completely and doubled in size within days.

On the plus side I got my Vit D result - it was 72. Really surprised me it was this high. Especially as one of the Nurses had just had hers checked and it was 17.
Long story short - think I now have trust issues. (Sorry not that short!)
Juls