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Juls · 08-21-2015, 08:07 AM

Hi Katherine
I have been in a herceptin and perjeta trial since May 13. 1st 8 cycles with docetaxol, last 32 cycles H & P only. At the moment doing well on it! I find it quite easy to take. It is the perjeta that is the trial drug and if anything changes it is no longer given. This is a worry especially as my health board has not approved Kadcycla (cost basis). Not sure if you can ask for it but it is not automatically considered here. Like yourself I find this odd - is there a plan! Other problem is that I find Oncologist a bit negative & you can't choose who you see here. Don't get me wrong. Onc is nice but you never get "doing really well" only "your fine" etc. Sometimes a little more positivity goes a long way.
Regards Juls

08-21-2015, 08:07 AM	#2
Juls Senior Member Join Date: Mar 2014 Location: UK Posts: 563	Re: lung mets, CT scan, and going off chemo Hi Katherine I have been in a herceptin and perjeta trial since May 13. 1st 8 cycles with docetaxol, last 32 cycles H & P only. At the moment doing well on it! I find it quite easy to take. It is the perjeta that is the trial drug and if anything changes it is no longer given. This is a worry especially as my health board has not approved Kadcycla (cost basis). Not sure if you can ask for it but it is not automatically considered here. Like yourself I find this odd - is there a plan! Other problem is that I find Oncologist a bit negative & you can't choose who you see here. Don't get me wrong. Onc is nice but you never get "doing really well" only "your fine" etc. Sometimes a little more positivity goes a long way. Regards Juls