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Is anyone on the neratinib trial?
I was hoping some of you might be in the neratinib and xeloda trial. I have brain mets and I am not really clear what my options are. My RO suggested WBRT but that really scares me. I can't really find any info on the success of neratinib on existing brain metastases. But that's probably what this trial is about. It's just confusing for me. And does WBRT really kill cancer in the brain or does it just slow it down? And one last question: do you know of a good RO in the San Francisco, Bay Area, Ca area? Thanks.
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June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
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