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Old 07-16-2014, 09:14 PM   #2
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
Re: new ASCO clinicalpractice guidelines for Stage IV her2+ breast cancer

So this is the new ASCO blessed treatment protocols for our oncologists…it is interesting to see the direction they are going in. I was surprised to see there was no comment on any special treatments for tumors with genetic mutations; like pi3K. Also I am troubled to see they recommend NOT performing routine MRI’s to screen for brain mets. We have so many members - like StephN who would not be alive today if she wasn’t screened.
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2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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