HER2 Support Group Forums - View Single Post - Significant Progression-Going On Doxil

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Tracy Arcari
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11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE

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07-12-2014, 06:40 AM	#45
MaineRottweilers Senior Member Join Date: May 2013 Posts: 570	Re: Significant Progression-Going On Doxil They are only numbers. You are strong, willful, beautiful and precious. You, with our will, and God's help will make this work. Numbers don't mean a thing. Live on! <3 __________________ Tracy Arcari ___________________________________________ 11/12 BSE ignored the lump for SIX months. 5/1/13 IDC ER/PR- HER2/neu+++ 5/14/13 Mastectomy and SN biopsy 5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue. 5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline. 6/4/13 Installed my little purple power port. 6/14/13 Chemo started TCH 6/14/13 Informed of suspicious ares on scans scheduled PET. 7/1/13 PET Scan NED! 9/27/13 FINAL CHEMO taken! ----well, maybe not. 10/15/13 Three little tattoos. 10/24/13 Radiation begins and fourth tattoo placed. 11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter. 1/2/14 Happy New Year, you have a Goiter? Muga down to 59%. 1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER! 5/2/14 Herceptin completed! New kitten! 8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR. 2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision. 4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready. 5/4/15 Brain MRI clear (big sigh of relief) 7/30/15 Back Pain 8/31/15 Radiograph: compression fracture L2 9/10/15 Bone Scan positive 9/21/15 CT scan conclusive for tumor 10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing. 10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary. ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells. 10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine. 10/14/15 Radiation consult back to the cooker. 10/20/15 MUGA 50% down from 54% after a year off Herceptin (???) 10/21/15 Kyphoplasty L2 10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere 10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!! 10//29/15 Xgeva 10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty. 10/30/15 CA27-29 63 U/mol (<38 U/mol) 11/3/15 First Trip to see Dr. E. Mayer at DFCI 11/4/15 Surgical consult to re-install my little purple power port. 11/9/15 Radiation treatment one of five. 11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today. Yes, we really are going down this road again. 12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets. 12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15) 12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B. 12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working. 1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva. 3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????) 3/31/16 Discontinue Taxol start Arimidex, still getting H&P. 6/2/16 Discontinue Arimidex and start Exemestane. 6/18/16 PET is NEAD!! 7/1/16 Discontinue Exemestane and restart Armidex (SEs) 8/29/16 CT/Bone Scan Stable (still uptake at T10-11) 10/3/16 BSO pathology negative 10/10/16 MRI: Brain clear! 10/14/16 Switched care to Harold Alfond Center for Cancer Care 11/24/16 Xgeva, New MO preference to Zometa 12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET 1/12/17 PET shows NEAD celebrate with a new puppy! 3/29/17 CT & BS = NEAD 7/31/17 Aetna denies access to H&P <gearing up for a fight> 8/4/17 CT& BS= STABLE 8/9/17 No treatment, Aetna still denying H&P 8/14/17 Aetna appeal approved H&P through February 2018! 2/5/18 CT & BS = STABLE //