Re: Ten Years Stage 4 … and still A-OK
Honestly, a glass of wine, chocolate and a web chat with old her2 friends…what could be better?
Jackie, Caya, Sassy, Jean and StephN - It seems like all of you too are hanging in there with NED - NED, my how he gets around - we need to introduce him to a few more members...
StephN - My cancer never showed on a PET scan - CAT scans only. I feel like I have had so much radiation that I should be starting to glow in the dark. I always think of you with special amazement - that you conquered brain mets and have been NED for so long.
And Kim from CA - another of my mentors - It is so good to hear from you. I am wondering how you are - judging by your signature, you are still in treatment? How is the Perjeta working for you? My second opinion doctor at Sloan Kettering seems to love Perjeta; says it is similar to Herceptin and that we can be on it long term. Is it working magic on you?
XOXO
Kim
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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