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Old 02-07-2014, 08:20 PM   #1
Saygoon
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Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
Cool Another Scan and scanxiety

So what is WRONG with me!!! I have been feeling really better than I have in a long time. Despite this bitter cold weather my stiffness hasn't been as bad. No more than the usual aches and pains that I have experience since dx. Lots of problems with my sciatic/leg, that's kind of new. Life for the most part is good but....( here's that godawful but) I went for my every three week Herceptin treatment and my Onc says he wants to do a Pet Scan. No real reason just haven't had one in a year and he thinks its a good idea. All of a sudden I feel anxious about every little ache and pain in my body!!! Scared to death my cancer had spread. I went over in my mind everything the Onc said and reminded myself its just routine but my brain just wants to spin and spins and spin AHHHH!!!. My bone scan and MRI that I had in Dec. show my mets are stable. WOW! Am I just nuts or has anybody else felt this way?
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Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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