HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 01-23-2014, 02:05 PM

[COLOR="Purple"]
Remember Joe, our fabulous hands-on Webmaster, Christine husband?! Joe oversaw our every post every hour of every day it seemed and was there for us at every turn?! I bless him and Christine all the time.

Joe and I talked on the phone for hours. I loved that man. So very sad when he passed on.

He had put me in touch with Ann Fonfa who is a tireless advocate for breast cancer patients. She is a longtime survivor who runs THE ANNIE APPLESEED PROJECT@mail.vresp.com

She holds conferences annually and reports to those on her mailing list (me, me, me!!!) and I always find informative info on breast cancer and alternative therapies. Ann operates out of West Palm Beach, Fla.

So, I had to share this with you, my Sisters, cause I am always thinking of you, even when I don't post.

This caught my eye among many others things.

Click here: New Tab

Love,
Andi

01-23-2014, 02:05 PM	#1
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Coffee enemas...???!!! [COLOR="Purple"] Remember Joe, our fabulous hands-on Webmaster, Christine husband?! Joe oversaw our every post every hour of every day it seemed and was there for us at every turn?! I bless him and Christine all the time. Joe and I talked on the phone for hours. I loved that man. So very sad when he passed on. He had put me in touch with Ann Fonfa who is a tireless advocate for breast cancer patients. She is a longtime survivor who runs THE ANNIE APPLESEED PROJECT@mail.vresp.com She holds conferences annually and reports to those on her mailing list (me, me, me!!!) and I always find informative info on breast cancer and alternative therapies. Ann operates out of West Palm Beach, Fla. So, I had to share this with you, my Sisters, cause I am always thinking of you, even when I don't post. This caught my eye among many others things. Click here: New Tab Love, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...