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Old 01-21-2014, 08:14 AM   #4
KristinSchwick
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Join Date: Jun 2011
Location: Iowa
Posts: 231
Re: Faslodex and castor oil concerns

I know nothing about the ingredients in faslodex but I can tell you a lot about being on it. It is a huge pain in the ass, literally. It is two huge injections of 5 ml each, one into each butt cheek. It hurts a lot, worse than any IV I have had. But it is fleeting and once the needle is out, it's not too bad. After a few months the butt does adjust and you get accustomed to having a higher level of inflammation in the muscle there, but things like jogging don't feel all that great at first. Best way to handle the soreness and inflammation is actually using the muscle and breaking up any scar tissue that may want to develop. The other thing that helps is heat packs right after injection. I was only on it for a few months before I progressed, and it actually took another 4 months for my butt tenderness to go back to normal. Don't get me wrong, it is a great drug, just want you to have all the info.
Kristin
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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