[linn65]

Well,

He tried to make a fast get away and not want to answer any questions. And I said wait, wait I want to talk to you about taking Tamoxifen. I dont understand all of this but this is what I said and his reply.

Do you think Tamox could be causing my feet and hands to hurt?

Answer: It could be

Can I be switched to an AI

Answer: You are too young to be post menapausel....How old are you? I tell him 48 then said I thought Chemo threw me into menapause, so I guess I am confused. He said do you still have your period? I said no because I have a Mirena (IUD) for birth control and it stops your period. Then he said well having the IUD and taking tamox can cause higher risk of blood clots so nothing immediate but you need to probably have it removed.

I then said because my ER went from 30+ to 73+ after treatments is that a good thing??? I have read about the crosstalk, and I don't know if that is a good thing to take because of my change. He said, Oh that cross talk thing has been studied for the past 15 years on mice and rats and you don't need to worry about that. I said well when this all started I wanted to have Projecta and you said no so would I get it today??? He said absolutely I would!!! Well, I said don't you think you should take FSH, Estadial and one other kind of blood work test to see if I am post menapausal and an AI might be better for me???? He said we could do that but you are awful young to be post menapausal.

After saying I want this blood work done and if it says pre-menopause then fine I will stay on the tamoxifen I guess even if it causes my feet and hands to hurt (which maybe it isn't that a all)It could be neropathy from all the chemo drugs.

My thought was if Crosstalk is real, my big change in ER, and if post menapause then to make the best decision for me would change to an AI.

All he ever says when I see him is what are you doing for fun?? Are you going out and dancing and drinking....He doesn't want to discuss things that are most important to me. He is nice but I want to talk about these things and he just blows me off kind of.

However, after pushing I got the blood tests done and called Friday to find out what the results and she was supposed to call me back and didn't. I had my appt on Tuesday and they said I would know within 48 hours! Well, again Friday they should have definately had them and should have been able to look up on the computer.

I will call and have them fax them to me because I want to see if I am still pre or post!!

I just don't understand why he doesn't believe in crosstalk and how that is old stuff.....

On a side not about my port.....She scheduled to have me comeback in 8 weeks to have it cleaned. I said will I went 5 months this time, so why now 8 weeks??? Well, that is protocal and again it might be but it was not a concern before. I am not going to drive 40 minutes 1 way and take an hour off work becuase even though they close at 5 I need to be there at 4 to clean port. I said can't I just come in at 4:45 to clean my port and she said no they have to have time to do all the paperwork and 4 is the latest. Geez, it take 1 minute to flush the port.

A friend went with me and when we left she said....Wow, Chrystal you need to change doctors!! And after this blood test comes back I might just do that, but I just don't know where I will go either.