HER2 Support Group Forums - View Single Post - Appt today with my ONC

Jackie07 · 01-20-2014, 03:43 AM

Carol Ann,

Due to my very injured brain, I really couldn't tell which symptoms might have been caused by Tamoxifen. As my dear husband had retorted (when I blamed the delay of the diagnosis on him): "You are always tired - ever since I've known you ...

Tamoxifen did increase the thickness of the lining of my uterus (the surgeon said that there's hyperplasia found in the uterus). My request for a hysterectomy/oophorectomy was approved based on personal and family cancer history (I located the HNPCC cluster after putting in all the cancer incidents in my family when 2nd Brother was diagnosed with colon cancer - Mother had already had NHL) and the BRCA result.

Linn,

How did your appointment go? What did you all decide?

01-20-2014, 03:43 AM	#7
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: Appt today with my ONC - tamox or AI?? Carol Ann, Due to my very injured brain, I really couldn't tell which symptoms might have been caused by Tamoxifen. As my dear husband had retorted (when I blamed the delay of the diagnosis on him): "You are always tired - ever since I've known you ... Tamoxifen did increase the thickness of the lining of my uterus (the surgeon said that there's hyperplasia found in the uterus). My request for a hysterectomy/oophorectomy was approved based on personal and family cancer history (I located the HNPCC cluster after putting in all the cancer incidents in my family when 2nd Brother was diagnosed with colon cancer - Mother had already had NHL) and the BRCA result. Linn, How did your appointment go? What did you all decide? __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 01-20-2014 at 03:52 AM..