HER2 Support Group Forums - View Single Post - Tumor Profiling

Lien · 11-26-2013, 05:51 AM

That is the way we want cancer research and treatment to go. Targeted tx for specific tumors.

A little caveat on Everolimus/Afinitor: most people do great on it, but a friend of mine had a serious SE. Because it was so rare, her docs didn't realize it was the Afinitor and she was in the ER several times needing transfusions. She stopped taking Afinitor and bounced back within weeks, so it is reversible. The SE's were so rare that none of her doctors had heard of it. Just the fact that a friend of hers is a very knowledgeable bc advocate saved her from more grief. My friend developed a persistent cough and weakness. When she got worse, she needed the transfusions.
But again, it is very, very, very rare. It is a very promising new drug and I hope that if you need it, you won't develop these SE's and go back to the arms of NED, dancing with him forever.

Jacqueline

11-26-2013, 05:51 AM	#27
Lien Senior Member Join Date: May 2006 Location: Haarlem, the Netherlands Posts: 835	Re: Tumor Profiling - I have to share with you That is the way we want cancer research and treatment to go. Targeted tx for specific tumors. A little caveat on Everolimus/Afinitor: most people do great on it, but a friend of mine had a serious SE. Because it was so rare, her docs didn't realize it was the Afinitor and she was in the ER several times needing transfusions. She stopped taking Afinitor and bounced back within weeks, so it is reversible. The SE's were so rare that none of her doctors had heard of it. Just the fact that a friend of hers is a very knowledgeable bc advocate saved her from more grief. My friend developed a persistent cough and weakness. When she got worse, she needed the transfusions. But again, it is very, very, very rare. It is a very promising new drug and I hope that if you need it, you won't develop these SE's and go back to the arms of NED, dancing with him forever. Jacqueline __________________ Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.