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Andrea Barnett Budin · 11-18-2013, 02:53 PM

Some great feedback here, Caroline!

Just wanted to say, it was my 27 yrs of hot flashing dripping wet all day every day that I found myself saying to my dghtr, I don't know what to do. I feel like throwing myself out a window.

Now, I live in a one story house, and I wasn't threatening suicide but I was desperate and my dghtr/mother of 3, always busy and preoccupied stopped in my driveway and came around thoughtfully and said, Maybe you should see an endocrinologist.

This is the first wonderful endo lady I am speaking of. She'd come highly recommended and both my husband and I loved her from the start.

It came to my attention that with allllll the many bld tests we have over the yrs, this new doc ran things I'd never imagined before! And it occurred to me that -- WE SHOULD ALL HAVE AN ENDOCRINOLOGIST. I say this knowing that yet another doc is about the last thing any of us want, but...

With adrenals gone amok -- this is what you need.

It was a holistic/chiropractor lady who gave me a supplement that cured my hot flashes after 27 yrs and untold docs and bks digested by me. It had porcine glandular something in it among other things and within 2 mnths I was cured. However, it knocked my already low TSH even lower and I stopped taking it immediately. My TSH has risen to its usual low (?? my norm) and my flashes have not returned.

Before that I was living on Evening Primrose Oil for some relief.

So, Caroline, definitely, please consider seeing a good endocrinologist and doing all that Becky wisely suggested! Amazing that Becky's mom had all those problems and she therefore speaks from intelligence and experience...

And thanks, Lani. I was on H ev wk for 3 yrs. I was offered the triple dosage ev 3 wks deal a yr before I switched (based on studies in France) but ever cautious opted to wait to see if they all lived... Honestly...

But receiving H weekly and then triple dose I recall the doc saying -- 1 hr and I negotiated to an hr and a half. Just didn't feel right... Not that I was looking to spend any additional time in the chemo room, but... My Inner Voice said, Not so fast...

Don't you just love our club?! All these ladies rock. Blessings my Sisters...

Andi

11-18-2013, 02:53 PM	#6
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Need input Some great feedback here, Caroline! Just wanted to say, it was my 27 yrs of hot flashing dripping wet all day every day that I found myself saying to my dghtr, I don't know what to do. I feel like throwing myself out a window. Now, I live in a one story house, and I wasn't threatening suicide but I was desperate and my dghtr/mother of 3, always busy and preoccupied stopped in my driveway and came around thoughtfully and said, Maybe you should see an endocrinologist. This is the first wonderful endo lady I am speaking of. She'd come highly recommended and both my husband and I loved her from the start. It came to my attention that with allllll the many bld tests we have over the yrs, this new doc ran things I'd never imagined before! And it occurred to me that -- WE SHOULD ALL HAVE AN ENDOCRINOLOGIST. I say this knowing that yet another doc is about the last thing any of us want, but... With adrenals gone amok -- this is what you need. It was a holistic/chiropractor lady who gave me a supplement that cured my hot flashes after 27 yrs and untold docs and bks digested by me. It had porcine glandular something in it among other things and within 2 mnths I was cured. However, it knocked my already low TSH even lower and I stopped taking it immediately. My TSH has risen to its usual low (?? my norm) and my flashes have not returned. Before that I was living on Evening Primrose Oil for some relief. So, Caroline, definitely, please consider seeing a good endocrinologist and doing all that Becky wisely suggested! Amazing that Becky's mom had all those problems and she therefore speaks from intelligence and experience... And thanks, Lani. I was on H ev wk for 3 yrs. I was offered the triple dosage ev 3 wks deal a yr before I switched (based on studies in France) but ever cautious opted to wait to see if they all lived... Honestly... But receiving H weekly and then triple dose I recall the doc saying -- 1 hr and I negotiated to an hr and a half. Just didn't feel right... Not that I was looking to spend any additional time in the chemo room, but... My Inner Voice said, Not so fast... Don't you just love our club?! All these ladies rock. Blessings my Sisters... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...