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Old 11-11-2013, 06:43 PM   #31
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Re: Tsh low -- what does it mean?

Thanks, Aussie Girl.

I have checked way back to when my fav endocrin doc/lady was with me. I see 2007 -- low TSH and notes of hers HYPERTHYROID.

I once told me no more than 3,000 B-12 b/c of the hyper thing. I haven't gone higher, knowing that.

I now ask to be tested for B-12 along w/my D -- and I am low normal on D, even w/50,000 a wk (10,000 -- 5 days a wk -- I like breaking it down). And my B-12 is above normal by sev thousand.

I read that too much B-12 can't hurt you in several links.

Feel I could use another thousand at least, but am reticent to go there.

Would you think B-12 could cause the hyperthyroid???

My onc (not the nut onc in NY) says to stop B-12 cause the liver stores it for 5 yrs and I am above normal. He is brilliant and I adore him but he knows nothing re supplements.

I did stop -- for 2 days -- I was foggy, unable to focus, felt like utter crap on a stick and tried 2,000. Definitely need the 3,000. And, as I say, want more...

But TSH has apparently been low for a long time. Maybe it's my norm????

My BUN always comes in high I see on all my bld tests. I would ask the chemo nurses and doc why is that? No one really knows. Says I should drink more water.

LOL. Taking all my supplements -- I drink about 10 glasses of water a day!!!

My BUN being high seems to be "my" norm... It's always the same, and always registers high.

I should complain to the lab... )

Appreciate your input, Aussie...
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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