HER2 Support Group Forums - View Single Post - Tsh low -- what does it mean?

Andrea Barnett Budin · 11-05-2013, 02:40 PM

Yes, Hope, my old freaked out endocrin lady doc kept saying I am hyperthyroid, when I asked if I needed iodine cause I felt so sluggish.

She did not ever explain anything to me. I need docs to have a conversation with me. We're talking about my body, right?

She'd have a staff member call and in 30 or less tell me I needed a thyroid scan, or that I needed an uptake test. When I'd ask what the uptake test was they said, I don't know. You'd have to ask the hospital.

I googled and it's a 2 day test done in the hospital. They inject some radioactive stuff into you and you go and come back in an hr or two and get xrays.

Then you have to do this a 2nd day.

I was very turned off.

Didn't understand why I needed this. Called and asked for the doc to call me re my TSH. She never did.

When I called again I was told, Ma'am, we are concierge practice... In a very snippy voice.

So I'm scheduled w/a new doc who can't see me till mid Dec.

And it's all preying on my brain...

When you say sub-clinical, does that mean you aren't being treated for hypothyroid?

I'm confused.
Andi

11-05-2013, 02:40 PM	#3
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Tsh low -- what does it mean? Yes, Hope, my old freaked out endocrin lady doc kept saying I am hyperthyroid, when I asked if I needed iodine cause I felt so sluggish. She did not ever explain anything to me. I need docs to have a conversation with me. We're talking about my body, right? She'd have a staff member call and in 30 or less tell me I needed a thyroid scan, or that I needed an uptake test. When I'd ask what the uptake test was they said, I don't know. You'd have to ask the hospital. I googled and it's a 2 day test done in the hospital. They inject some radioactive stuff into you and you go and come back in an hr or two and get xrays. Then you have to do this a 2nd day. I was very turned off. Didn't understand why I needed this. Called and asked for the doc to call me re my TSH. She never did. When I called again I was told, Ma'am, we are concierge practice... In a very snippy voice. So I'm scheduled w/a new doc who can't see me till mid Dec. And it's all preying on my brain... When you say sub-clinical, does that mean you aren't being treated for hypothyroid? I'm confused. Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...