Hi Cool Breeze! Your a good lady to know!! That first link is for Tykerb not Perjeta. The only trial showing up in Canada now with Perjeta is for her2+ Gastro none for boobs. My onco told me last week that there wasn't anymore trials for Perjeta. Last January when I first saw him I asked about trials and he said that there wasn't any for stage 4. You are spot on about the trust thing. We never trusted him but we don't have choice options here in Ontario, it has to be proven malpractice to change onco's.
Yes that Toronto women got results because of the small size of her tumor but herceptin was already being funded by Ontario so they had to give it to her. I might start screaming as well....I really don't want to do that tho!!
Yes that last link is what gave me hope last month!!!! When I saw my Onco it was approved for USE in Ontario, the trials proved that it was wildly successful last month and my Onco told me it was NOT funded by Ontario except private drug plans.
( so that's what it is. He told me to hand write a begging letter to Ontario health Ministry and beg for compassionate use/funds.
Well it doesn't look good, I've been reading like a mad women and all they'll cover is on my death bed. And further reading on that page is where I originally read that they will withdraw herceptin if I progress. I confirmed that earlier today with Laurie Kingston another Ottawa blogger that is the same as me, liver mets, er/pr- HER2+++ Laurie had a complete response to chemo and herceptin for 5 yrs then developed brain mets last year, successful brain surgery, Continued herceptin and is still Ned for her 6th year now. I questioned her specifically regarding progression and her Onco decided that brain mets was not progression and continued with the Herception. It's a technicality that He didn't ask Ontario health about herceptin he just continued treatment...don't ask don't tell type of thing. I'm sure my onco would let me croak...
I discussed my unhappiness regarding my care with Laurie 4 months and she said he didn't sound right but I that I needed an Ontario medical ombudsman to intervene but he/onco hasn't done anything wrong...just that he's NOT that great!