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Andrea Barnett Budin · 10-14-2013, 11:43 AM

NOOOOOOOOOOOOOOOOO!

In her last email to me (10/7) Amanda wrote of how hard she has tried (with what is available in Australia re genomic profiling). The cost of testing in US with all that would entail she said would exceed $15,000. She said she has more than 50 tumors each with their own profile that responds differently to tx.

She promised me she was trying to boost her immune system. She was very, very weak.

Her emails were getting shorter and shorter.

Full of love, Amanda always wrote, Thanks so much, Andi.

She had no doubt that some further possibilities would be available if she lived in the US. Phase 1 and 2 trails in Australia are limited and unfortunately she'd never responded to her HER2 tx. She remained hopeful that resting and recuperating will help her, however, her breathing and exercise capability was undeniably diminishing. She wrote, I WILL NEVER GIVE UP HOPING THOUGH. And again, she added, Thank you for caring. Amanda XX

My package to her has likely not yet arrived...

I just wrote to her earlier, because she hadn't responded to my last email, which she always does. I wanted permission to post her address, as some have PMd me, wanting to reach out to her, to shower her with cards.

Well, we can send our love to her beloved family!

Only yesterday, I saw a beautiful photo of Amanda on FB that a dear friend had taken. Her strength of Spirit shone!

AMANDA RYNNE
6 Killarra Avenue
Camberwell
Victoria 3124
AUSTRALIA

I am writing Amanda's name down in purple ink. I plan to touch it and close my eyes and send her my fervent love and blessings. I feel certain you will receive this energy. I will see her on the other side. Where we can hug and hold hands and dance, floating weightlessly with the joy of meeting. I smile dreaming of this...

Heartbroken! Shocked. Shaken to the core! Impossible. No one could have fought more!

Andi

10-14-2013, 11:43 AM	#36
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Rest in peace, Mandamoo. NOOOOOOOOOOOOOOOOO! In her last email to me (10/7) Amanda wrote of how hard she has tried (with what is available in Australia re genomic profiling). The cost of testing in US with all that would entail she said would exceed $15,000. She said she has more than 50 tumors each with their own profile that responds differently to tx. She promised me she was trying to boost her immune system. She was very, very weak. Her emails were getting shorter and shorter. Full of love, Amanda always wrote, Thanks so much, Andi. She had no doubt that some further possibilities would be available if she lived in the US. Phase 1 and 2 trails in Australia are limited and unfortunately she'd never responded to her HER2 tx. She remained hopeful that resting and recuperating will help her, however, her breathing and exercise capability was undeniably diminishing. She wrote, I WILL NEVER GIVE UP HOPING THOUGH. And again, she added, Thank you for caring. Amanda XX My package to her has likely not yet arrived... I just wrote to her earlier, because she hadn't responded to my last email, which she always does. I wanted permission to post her address, as some have PMd me, wanting to reach out to her, to shower her with cards. Well, we can send our love to her beloved family! Only yesterday, I saw a beautiful photo of Amanda on FB that a dear friend had taken. Her strength of Spirit shone! AMANDA RYNNE 6 Killarra Avenue Camberwell Victoria 3124 AUSTRALIA I am writing Amanda's name down in purple ink. I plan to touch it and close my eyes and send her my fervent love and blessings. I feel certain you will receive this energy. I will see her on the other side. Where we can hug and hold hands and dance, floating weightlessly with the joy of meeting. I smile dreaming of this... Heartbroken! Shocked. Shaken to the core! Impossible. No one could have fought more! Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...