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Old 09-30-2013, 04:49 PM   #46
LeahM
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Join Date: May 2012
Location: Bethlehem PA
Posts: 395
Re: The Pink-tober Madness begins!

I mentioned earlier in the thread that I was looking at the word "aware" in a whole new way these days...this is something I wrote recently that pretty much sums up my recent thought process.

So, are you aware yet? Perhaps you are one of those people who think the grass is greener on the other side of the fence. Well guess what folks? I live on the other side of the fence and I have got to say, my grass is not all that green. And there are weeds, lots of weeds, weeds that cut open the bottom of my feet!
So…here is something to be aware of as we enter Pink-tober; Pink-tober is all about celebrating women like me. “Survivors”, although, I prefer the term “Warrior Princess Extraordinaire” (sounds better, doesn’t it?) Yep, women like me who have beaten the odds…although, not really as the odds were in my favor. Yeah, I’m a freaking warrior princess extraordinaire….whatever….
Open your eyes!! Look around! See that lady over there that can’t seem to make up her mind between 2% and fat free milk? See that guy who just ran a red light? That person just got a Stage 4 diagnosis. Maybe they were diagnosed at Stage 4 from the get-go, or maybe, just maybe, their Stage 2 morphed to Stage 4 even tho they did everything they were suppose to do to become a “survivor”. Be aware folks that there isn’t a Stage 5.
All of us “survivors”? We are not “survivors”, we are merely still alive. And when something other than cancer kills us…well, then (and only then) can you call us “survivors”.
When you walk in cancerland you make cancer friends. And some of those friends are Stage 4. So when someone tells me how brave I am, how strong I am; all I can think is you should meet my friend “Wanda”. Wanda was Stage 4 from diagnosis. Wanda is strong. And tough. And brave. And full of life and love.
Write a story about Wanda and her struggles. Interview Wanda. MAKE PEOPLE AWARE THAT CANCER IS DEADLY!! Over 500,000 people died of cancer in 2012, are you aware of that? But Wanda isn’t a pretty picture (actually Wanda is beautiful)…Wanda has Stage 4 cancer and who wants to think about that? When newly diagnosed with cancer all you want to hear about is the success stories; you don’t want to know the horror stories, you don’t want to be aware, truly aware, of what could be your fate.
So then you are UNAWARE, which is worse than being aware.
You can’t control how you die; you can only control how you live. More people should be like my dear friend Wanda. AWARE that life is precious. AWARE that love is meant to be given to everyone, everyday. AWARE that you only get one chance at being alive so you must truly be the best that you can be.
And most importantly (in my opinion) you must be AWARE that you are not alone.
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
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