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Old 09-27-2013, 08:46 PM   #27
Saygoon
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Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
Re: The Pink-tober Madness begins!

The "Pink Thing" can be fun. I'm all for grabbing all the smiles and laughter I can. I even dye my hair pink and wear a cape but if I can bring a smile to someone newly diagnosed that helps me heal. But lets be realistic. Most of the awareness and fundraising is done by people who think they are truly helping find a cure. They don't stop to research how very little and I mean very little of their money goes to actual research and/or BC patients. I would love to see more money not just in research for a cure but to women who really need help. Help paying their bills feeding their children, everyday expenses that bring on sooo much stress. Sure there's alot of so called free stuff out there such as conferences etc. but what average woman can afford to travel to all that stuff? I agree - we ARE aware - find a cure!!!!! Companies need to quit making money off our pain! Ok Im done ranting now, thanks for listening.
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Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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