[dchips1]

Crazy ness, with limited options out there, and most surgical options, for me not an option. Or being told will just see what happens when the next "SPOT" shows up. It took over a year to get my It Herceptin started, since basically failing radiation to my thoracic spinal canal on the nerve tumours. When 1 of the 2 cofounding Doctors of the large group practice, says yes and took 3-4 months trying to make it work and see if we could do in a sterile procedure room at the hospital across the street from the office. Of course they said no eventually, so they decided we are doing it at the Office. they have given other drugs IT before including methotrexate, just not the Herceptin. Ironwood Cancer and Research Centers here in Arizona is who takes care of me. I did not have to sign anything, have had other DR's, offer support and train staff in the procedure. Frying your brain with WBR, and the side effects from that "regular" procedure has had more side effects and COST to treat them, then being part of an off label patient to add to all the other published random IT Herceptin tx off label. Hey my insurance company is paying for a vial a week to use no preservative, and they get a huge break from the drug company. So me getting IT Herceptin versus being paralyzed and having to have all that goes along with that, versus a treatment center, and a world renown Neurosurgeon practice, who is willing to participate. they should play nice with their 2 cents of advise!!! This is America and freedom of what we subject ourselves to to save our lives is our choice. to me is almost like being part of a "clinical trial" it is either going to work or not, there may be some side effects, but what happens in an official trial as well? FLIP of the Coin, Phase 1 could really mess you up. Or like herceptin original trials, save the Lives and change this beast into a Chronic chase rather than the Death sentence I was originally given in Jan of 2006. I have worked through most of the cancer years, and am still able to contribute to society, by volunteering, advocating for others and raising my children with my husband. Sorry this probably is totally a rant now, off topic. As I have told a few insurance people, other health care providers for myself and others. Do Not Make Me Come Down There And Stand on Your DESK!! Get it done, or get me your supervisor!!
As always LANI thank you for your dedication to help us with posting the latest.

Peace and prayers to all of those who have walked the path before me and their families. Yet gave their battle history to us whom followed, to be able to get "out of the box treatment" to save and extend the time and quality of life for me and those whom are affected the the big "C" word and the future impact of this disease.

Darita