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Old 05-07-2013, 02:05 PM   #9
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: NOW this IS ASTOUNDING!!!!!

Navigating breast cancer care can be brutal after a diagnosis. The Her2 support website was a god send.

I didn't just want to beat cancer. I wanted to be able to use my experience to improve treatment options for future breast cancer patients. I don't feel my doctors really understood that. They felt I'm just being a difficult patient.

I think the rest of you on the site understand - we are just looking to receive the best possible care that is available at the time of diagnosis. And we want to option to find clinical trials. The best thing about this site is I find others who understand and feel similarly.

Lani, you are forever finding and posting the latest news about breast cancer and frequently interpreting it. Sometime I read it and make fruit salad - comparing apples and oranges. I can say from your postings I have a good education on Her2 breast cancer.

That is a lot of posting!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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