View Single Post
Old 04-20-2013, 07:18 PM   #6
dearjilly
Senior Member
 
dearjilly's Avatar
 
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: IT herceptin for brain mets only??

Caya, I've been to PM for a couple of things, like new surgeon to do my other breast. That is on hold at the moment, as I have to deal with the uncertainty of my brain. Thanks for the thought on PM and trials. I'm on their website right now.
Darita, Thank you. I will ask my doctor again and may just beg, if it comes down to the fact that I have progression. Still hoping for necrosis after radiation. Keep us posted on the IT herceptin. What's it like?
Jill
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
[/SIZE][/FONT]
dearjilly is offline   Reply With Quote