Re: Sisters with Mets...should I stop Herceptin?
Hi Laura4252,
I am so happy to hear you are doing well on TDM1. My oncologist says that TDM1 will likely be my next line of treatment when my mets start to act up.
I continue on Herceptin infusions every 3 weeks. That is it. Except for my one short 2011 holiday from Herceptin, I have been getting Herceptin infusions since May 26, 2004. The one small tumor in my lungs remains - and is stable. It doesn't get bigger or shrink thus far. I had a biopsy done on that tumor. It has a PIK mutation and there is an off label drug that has shown some promise against that type of mutation if I need it. And while the Herceptin isn't intended to address a PIK mutation, the tumor is behaving. So we figure, if it ain't broke....
I will keep you posted.
And YOU, hanging in there and doing so well - are you experiencing any side effects from TDM 1? How are you and your family handling all of this?
XO Kim (from CT)
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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