HER2 Support Group Forums - View Single Post - 8 years since brain mets ... and counting

nsebesta · 03-20-2013, 04:59 PM

Steph - I only had liver mets - 2 of them in 2004. Had surgery in Feb 2005 to remove them. NED since then. I've been through 4 oncologist at MDAnderson. So for about 6 yrs I had CT scans, chest x-rays, mamograms, etc. every three months. I just finally put my foot down b/c I thought that was to much radiation. If I would have had active disease I could understand so many scans and test. One doctor was about to stretch it to 6 mos and then left. She apparently didn't put it in my file and the next 'new' doctor didn't want to do that right away.
I too have blood work done at the same time. I've discussed with my doctor going off herceptin - I'm just not brave enough yet. What made you decide to stop?

03-20-2013, 04:59 PM	#23
nsebesta Senior Member Join Date: Jan 2011 Posts: 36	Re: 8 years since brain mets ... and counting Steph - I only had liver mets - 2 of them in 2004. Had surgery in Feb 2005 to remove them. NED since then. I've been through 4 oncologist at MDAnderson. So for about 6 yrs I had CT scans, chest x-rays, mamograms, etc. every three months. I just finally put my foot down b/c I thought that was to much radiation. If I would have had active disease I could understand so many scans and test. One doctor was about to stretch it to 6 mos and then left. She apparently didn't put it in my file and the next 'new' doctor didn't want to do that right away. I too have blood work done at the same time. I've discussed with my doctor going off herceptin - I'm just not brave enough yet. What made you decide to stop?