[Lani]

Cathy--you ask what you can do.

I answer both what you can do for yourself and what you can do for others.My suggestion is to advocate by opening your mouth, writing emails, perhaps "getting in their face" The status quo is not finding cures/ transformation into treatable chronic disease fast enough

Susan Love foundation has an "army of women" giving samples, but not bone marrows. Let your doctors know that you would be willing to have one done if it might clear up whether or not a positive marrow meant one had minimal residual disease and thus were prone to recur and also willing to see if additional treatment/different treatment could clear the dtcs and if this prolonged survival.