[Eva Sophia]

Phil, my platelet count has actually remained normal - it was 195k last check. But when they did the advanced blood work, they found out it wasn't clotting correctly...so while there are a good number of them, they appear damaged / not working right - and so therefore my clotting is compromised.

I'm in the Marianne study so I can only skip so many sessions. Right now, I've been getting treated every other time, which is the minimum to stay in the study. And they just lowered my dose to 3.0.

I heard that I'm the last patient still in the study at my site, so I'm glad to hear there are other with 2+ years on the drug. With the weird side effects with my blood and the fatigue they say they can't explain (because my counts are not very low), it makes me worried that we don't really know what going on with me.

I would be happy to "tell my story" - just not really sure where the best place to do so is.

I would also be happy to learn more about your wife's story.