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Remission word used
Hello All,
The latest CT said the liver spot has stayed the same for the past 6 months. My oncologist wants to have a PT/CT scan ran in 8 weeks to see if it is dead tissue. My doc does not use the word remission lightly but that is indeed the word he used. My husband was there to confirm. I insisted on having a brain MRI as I know that Her2 spreads quickly to the brain. Recent bone scan said no evidence of metastic disease. Incidentally, the CT scan report said "no evidence of metastic disease."
I guess what I am asking, should I use the word remission or wait until 2 months from now when the PT comes back? Family and friends have already been calling and I am just not sure what to say. I know that many here have been stable/NED and in the course of a few weeks everything changes.
Thanks for your advice and support,
Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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